ORIJINAL ARAŞTIRMA
YouTube’daki Serebral Palsi Videolarının Kalite Analizi
A Quality Analysis of Cerebral Palsy Videos on YouTube
Received Date : 21 Mar 2023
Accepted Date : 06 Jun 2023
Available Online : 08 Jun 2023
Fulya BAKILANa, Gizem SARIÇİMENb, Burcu ORTANCAa, Fezan ŞAHİN MUTLUc,
Onur ARMAĞANa
aDepartment of Physical Medicine and Rehabilitation, Eskişehir Osmangazi University, Faculty of Medicine, Eskişehir, Türkiye
bClinic of Physical Medicine and Rehabilitation, Eskişehir State Hospital, Eskişehir, Türkiye
cDepartment of Bioistatics, Eskişehir Osmangazi University Faculty of Medicine, Eskişehir, Türkiye
Doi: 10.31609/jpmrs.2023-96884 - Makale Dili: EN
J PMR Sci. 2023;26(3):299-305
ÖZET
Amaç: YouTube’da serebral palsi gibi çocukluk çağı engellilik durumlarının,
bilgilendirici içeriklerinin kalitesi ve güvenilirliği hakkında yeterince
veri mevcut değildir. Bu çalışmanın amacı, 1-YouTube’daki
İngilizce serebral palsi video içeriklerinin hem karakteristik özelliklerini
hem de kalitesini değerlendirmek, 2-serebral palsinin yüksek kalitede ve güvenilir
bilgilendirici videolarını seçebilmek için önemli kriterleri tanımlamaktır.
Gereç ve Yöntemler: Ocak 2023 yılında “cerebral palsy” anahtar
kelimesi ile YouTube taraması yapıldı. Yüz elli bir video çalışmaya dâhil
edildi. Beğeni, yorum sayısı, video süresi gibi video metrikleri analiz edildi
ve videolar 2 gruba ayrıldı: bilgilendirici (n=63), deneyimsel (n=88). Bilgilendirici
videoların kalitesi, güvenilirliği ve popülerliği, Global Kalite Skoru,
modifiye DISCERN skoru ve Video Power İndeks ile değerlendirildi. Bulgular:
Bilgilendirici videoların %41’i düşük kalitede iken, %27’si yüksek
kalitede, %32’si ise orta kalitede kabul edilebilir idi. Videolar kalite düzeyine
göre gruplara ayrıldığında, sadece bilgilendirici videonun kaynağı
(p<0,001) ve DISCERN skorları (düşük-orta: p=0,001, düşük-yüksek:
p<0,001) gruplar arası farklı bulundu. DISCERN skorları, kalite seviyesine
göre artış gösterdi. Hekimler tarafından yüklenen videoların %93’ü ortayüksek
kalitede idi. Bu oran, resmî derneklerde %88, fizyoterapistlerde %56
ve hasta veya ailelerinde %66, kimliği belirsiz kişilerde %16 idi. Sonuç:
YouTube’daki serebral palsi hakkında bilgilendirici videoların yarısından
fazlasının kalitesi (%59) kabul edilebilirdir. Çalışmamızın sonuçlarına göre
YouTube platformunda uygun serebral palsi video seçimi için hekimler veya
resmî dernekler tarafından yüklenmiş videolar tercih edilmelidir.
Anahtar Kelimeler: Serebral palsi; kalite; güvenilirlik; YouTube
ABSTRACT
Objective: There is a paucity of data pertaining the quality
and reliability of information presented on YouTube about childhood disabilities,
such as cerebral palsy (CP). The aims were, 1-to evaluate both
characteristics and quality of CP YouTube video content presented in English,
2-to identify criteria that can be important for selecting high quality
and reliable informational CP videos. Material and Methods: YouTube
was searched using the keyword “cerebral palsy” in January-2023. 151
videos were included to the study. Video metrics such as number of likes,
comments, video duration were analysed and videos were divided into two
groups: informational (n=63), experimental (n=88). The quality, reliability
and popularity of informational videos were evaluated with Global Quality-
Score, modified DISCERN score and Video Power-Index. Results:
While 41% of informational videos were low quality, 27% were high quality,
32% were moderate quality, considered as acceptable. Only information
provider (p<0.001) and DISCERN-scores of videos (low-moderate
quality: p=0.001, low-high quality: p<0.001) were different according to
quality level. DISCERN scores increased with quality level. 93% of videos
which was uploaded by physicians were high-moderate quality. This rate
was 88% for official associations, 56% for physical therapists and 66% for
patients or families, 16% for non specified people. Conclusion: The quality
of more than half of informational YouTube videos (59%) on CP were
considered as acceptable. According to our study results, to make appropriate
CP videos in YouTube platform, the videos who were uploaded by a
physician or an official association should be selected.
Keywords: Cerebral palsy; quality; reliability; YouTube
REFERENCES
- Robertson CM, Svenson LW, Joffres MR. Prevalence of cerebral palsy in Alberta. Can J Neurol Sci. 1998;25:117-22. [Crossref] [PubMed]
- Mutch L, Alberman E, Hagberg B, et al. Cerebral palsy epidemiology: where are we now and where are we going? Dev Med Child Neurol. 1992;34:547-51. [Crossref] [PubMed]
- McIntyre S, Goldsmith S, Webb A, et al; Global CP Prevalence Group*. Global prevalence of cerebral palsy: A systematic analysis. Dev Med Child Neurol. 2022;64:1494-506. [Crossref] [PubMed] [PMC]
- Khandaker G, Muhit M, Karim T, et al. Epidemiology of cerebral palsy in Bangladesh: a population-based surveillance study. Dev Med Child Neurol. 2019;61:601-9. [Crossref] [PubMed]
- Ketelaar M, Volman MJ, Gorter JW, et al. Stress in parents of children with cerebral palsy: what sources of stress are we talking about? Child Care Health Dev. 2008;34:825-9. [Crossref] [PubMed]
- Aydin R, Nur H. Family-centered approach in the management of children with cerebral palsy. Turk J Phys Med Rehab. 2012;58:229-35. [Link]
- Zhao Y, Zhang J. Consumer health information seeking in social media: a literature review. Health Info Libr J. 2017;34:268-83. [Crossref] [PubMed]
- Caron JG, Light J. Social media experiences of adolescents and young adults with cerebral palsy who use augmentative and alternative communication. Int J Speech Lang Pathol. 2017;19:30-42. [Crossref] [PubMed]
- Bora K, Das D, Barman B, et al. Are internet videos useful sources of information during global public health emergencies? A case study of YouTube videos during the 2015-16 Zika virus pandemic. Pathog Glob Health. 2018;112:320-8. [Crossref] [PubMed] [PMC]
- Garg N, Venkatraman A, Pandey A, et al. YouTube as a source of information on dialysis: a content analysis. Nephrology (Carlton). 2015;20:315-20. [Crossref] [PubMed]
- Kumar N, Pandey A, Venkatraman A, et al. Are video sharing web sites a useful source of information on hypertension? J Am Soc Hypertens. 2014;8:481-90. [Crossref] [PubMed]
- Furtado MAS, Sousa Junior RR, Soares LA, et al. Analysis of informative content on cerebral palsy presented in Brazilian-Portuguese YouTube videos. Phys Occup Ther Pediatr. 2022;42:369-83. [Crossref] [PubMed]
- Zengin O, Onder ME. Educational quality of YouTube videos on musculoskeletal ultrasound. Clin Rheumatol. 2021;40:4243-51. [Crossref] [PubMed] [PMC]
- Erdem MN, Karaca S. Evaluating the accuracy and quality of the information in kyphosis videos shared on YouTube. Spine (Phila Pa 1976). 2018;43:E1334-E1339. [Crossref] [PubMed]
- Singh AG, Singh S, Singh PP. YouTube for information on rheumatoid arthritis--a wakeup call? J Rheumatol. 2012;39:899-903. [Crossref] [PubMed]
- Kocyigit BF, Nacitarhan V, Koca TT, et al. YouTube as a source of patient information for ankylosing spondylitis exercises. Clin Rheumatol. 2019;38:1747-51. [Crossref] [PubMed]
- Moon H, Lee GH. Evaluation of Korean-language COVID-19-related medical information on YouTube: cross-sectional infodemiology study. J Med Internet Res. 2020;22:e20775. [Crossref] [PubMed] [PMC]
- Ng CH, Lim GRS, Fong W. Quality of English-language videos on YouTube as a source of information on systemic lupus erythematosus. Int J Rheum Dis. 2020;23:1636-44. [Crossref] [PubMed]
- Li HO, Bailey A, Huynh D, et al. YouTube as a source of information on COVID-19: a pandemic of misinformation? BMJ Glob Health. 2020;5:e002604. [Crossref] [PubMed] [PMC]
- Delli K, Livas C, Vissink A, et al. Is YouTube useful as a source of information for Sjögren's syndrome? Oral Dis. 2016;22:196-201. [Crossref] [PubMed]
- Shaunak M, Kelly VB. Cerebral palsy in under 25 s: assessment and management (NICE Guideline NG62). Arch Dis Child Educ Pract Ed. 2018;103:189-93. [Crossref] [PubMed]
- Bernard A, Langille M, Hughes S, et al. A systematic review of patient inflammatory bowel disease information resources on the World Wide Web. Am J Gastroenterol. 2007;102:2070-7. [Crossref] [PubMed]
- Ertem U, Özçakır S, İrdesel FJ, Günay SM. YouTube as a source of information on piriformis syndrome exercises. Turk J Phys Med Rehab. 2023;69:15-22. [Crossref] [PubMed] [PMC]